Saturday, February 22, 2014

Information

Some have text or called asking about pathology results from Paislees heart tumor. We still don't know detailed results and it could take up to two weeks. Our cardiologist says he calls pathology everyday just to see, so our doctors are very anxious too. Believe me, I will tell you when I know.  The doctor did explain yesterday afternoon that her tumor was very large in comparison to her artery and was very attached. He had to cut into lining of artery so that is why Paislee will be on blood thinner. We are trying to prevent blood clots and her blood needs to be a certain degree of thickness. Yesterday we went through several teaching classes of how to give injections and how to change ports. I had to do one myself on Paislee. That was not fun at all. She is so tired of being poked. You wouldn't believe how excited she is when she sees her medicine is oral and not in a needle. We have three more months of injections. Since Paislee is on blood thinner, she bruises every time at an injection. This is very scary for a four year old. As parents we are on edge with this high dosage of medication. If she hits her head or falls we have to call cardiology. Do you remember my child is four? They do these things. 
She has fluid around her heart still in the echo, but the doctor said we will fix that. We have overcome so much in this week and we are so blessed to have gotten this far. We have a long, long, way to go but looking back, my child has made huge steps. Thank you for your thoughts and prayers and we will update you Maybe we will be home soon!

No comments: