Saturday, February 22, 2014

Going home!!


We are dismissed! Paislee is very weak but she has a smile on her face!! She still has pain medicine and injections to take. We have had numerous classes we have had to take on ways to take care of wounds, CPR, giving injections, putting ports in, to everything you can think of. We can have no visitors for at least 2 weeks and not a lot of public contact for up to six weeks. She does still have fluid around her heart which will continued to be monitored. We have many doctor appointments through the week and the coming weeks. Our journey has just begun. We go to hemotologists, cardiologists, pulmonologist, gastroentologists, ENTs, and our regular doctors. I am excited we are finally out, but oh so nervous especially with our high amount of blood thinner. The bruising looks horrible and to top it off, we found Paislee is very sensitive to latex. She is very bruised and red everywhere. Throughout the coming weeks, we will learn more about medication and try to regulate it which is going to be a tough job, but we can do this. Our main blessing is she is alive and the doctors cut out the tumor just in time. My Paislee is a one of a kind "princess"

Silly face for Mommy


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