Friday, June 29, 2012

Paislees heart update


Paislee went to Vanderbilt this week for her reevaluation appointment with her cardiologist. Paislee has the white coat syndrome now. She is so scared they are going to hurt her ears after out ENT experience we had a couple of months ago. Paislee had to get a ecocardiogram first. She would never lay down for the radiologist and was tensed up the whole time. The radiologist was very good with her and she got to watch the movie "Toy Story" during the echo, but she eventually had to do the echo was Paislee sitting up. At least, Paislee had stopped crying. We then went to get an EKG. Paislee was a little more relaxed with that. She got cookies and juice so that seemed to satisfy her. So then it was time to meet with the cardiologist after all the test, I was a little nervous I admit. Paislee had been officially diagnosed with a "chronic ecogenic mass in her left cusp of her coronary artery," in other words Paislee has a mass inside her coronary artery. The doctors are worried about it blocking her blood flow in the artery, it was also blocking her valve but it is not that big in that area to block flow. But this is the amazing and different thing...her heart has done an "artery collateration" which means her right artery has branched off and has grown to help her left. Basically Paislee's heart has done it's own bypass. I have never heard of this but it does happen in some patients even though it is very rare. This bypass might help us where we will not have to have surgery on the mass. It is amazing how your own body adapts. The doctor explained to us if Paislee has to have the surgery to remove the mass, then this will be BIG surgery for Vanderbilt. He doesnt know risks because this (the mass at the location in the heart) is something that has never been seen before. We do not want to have surgery if we can avoid it, but I do want Paislee to live a normal healthy life. We now are scheduled to have a "dopeamine" stress test again to measure the blood flow in the heart. This is basically a nuclear stress test. Paislee had one of these last year and will probably continue to have one of these every other year.
So I take this news with mixed emotions....
....I wonder why the heart has bypassed, is it telling us her heart is going to start slowing down blood flow?
....I wonder if my child will ever have surgery?
....I wonder if she will be able to play without concerns?
There are a lot of what ifs, but would I be a normal mom if I didnt think of them? My Paislee has been through enough.
Then I look at the blessings......
....Paislee has not shown any sign of blood flow restriction
....Paislee's mass is still in the same spot and has not moved to block other arteries besides the one and the valve
....Paislee's heart knew that it needed to help and her own body created a bypass so her flood flow would be okay,
....Paislee DOES NOT have cardiomyopathy which we told and told by other doctors. Her heart muscle is enlarged because it has been prominent and helping the other side.
Most important..Paislee is a very active little girl and she has made it through all these obstacles including blood infections, pnemonia, stomach issues and now her heart and she is still going strong.. PRAISE GOD!

No comments: