The past few days...

What a week...so far. Our gastroentologist at Vanderbilt called us with the results from Paislee's tests she had at the children's hospital. We honestly thought everything went well, especially since we didn't hear something right away. Until the call....I was wondering what was taking the doctor so long to call. I knew something was wrong when she said, "Mrs. Stanley, Paislee is a sick little girl." My response was...(pause) "I know." I mean what am I supposed to say. I know she is sick, I know she has problems, I mean that is why we needed these tests done. I guess to hear it from a doctor it is reality. Paislee has pathological reflux which means she will not outgrow it. It has to do with something structurally wrong with her esophogus. Paislee had very high acid levels while she was on her ph probe testing (the 24 hr nightmare) especially during nightime and while laying down. The doctors contemplated surgery,but since she is so young, they decided on another approach, to start Paislee on acid therapy treatment. Paislee now has to take one medicine in the morning, and two at night. One is a medicine that lasts for 24 hours. On top of that lets not forget the allergy medicine, etc. My little girl is only 2 and we have 5 medications we take in one day and everyday. That is when she is not "sick" with anything else. Paislee has had episodes of waking up 2-3 times a night coughing, gagging, etc. Hopefully we will know within 3-4 weeks if this acid cycle treatment will work. I knew she had reflux but I always thought and was told "she will grow out of it, it is not that uncommon." So that is what I did, I thought it was just something that would pass and then it would correct itself and we could move right along. WRONG, as the doctor put it, we will always have it and it might be somewhat corrected with surgery, but not 100 percent.
Just when we thought we were doing okay, but I think about others and I tell myself that things could be a lot worse. I am blessed that I have a great daycare that Paislee attends and takes care of her, and pays attention to her medical needs. I am also blessed with a great husband and family. Sometimes I do get frustrated and stressed because it seems as if it one thing after another. Things go great for a while. I mean, we celebrate around this house if Paislee is off antiobiotics for a month! So as you say your prayers today, please think of us and pray that Paislee improves and that this treatment will work, because we don't want to have surgery. Paislee has been through enough in these last 2 years.
As always, we will get through this...but on a positive note here are some pictures of Paislee spending time with her daddy this week as they went "exploring" around in the yard.