Vanderbilt Children's Hospital

Paislee had to go to Vanderbilt Childrens Hospital in Nashville this week. She has been having stomach issues that will not seem to go away. She also will not eat or drink much. Out GI doctor decided to perform an endoscopy of her stomach and esophogus and a ph probe test. During the endoscopy they did several scrapings of the esophogus, repaired her sphlinctor muscle (the flap to your stomach) since Paislee had spillage, and put the ph probe tube in for Paislee to be monitored for 24 hours. Sounds like simple procedures...right.....WRONG.
If you don't know by now, my child has a heart tumor in her artery which no one has ever seen. (at least not LeBohneur or the 12 doctors at Vandy who are researching it)which means everytime my child is sedated a cardiologist has to be present and give his okay. So scheduling can sometimes come into play.
Paislee had her surgery scheduled at 11:00. She had nothing to eat or drink after midnight the day before so I admit she was pretty hungry. We waited and waited and we didnt head to surgery until 12:15. Lets say people were a little ill. But while in the holding room. We snapped these pictures. She has no idea what she is headed into.


So the nurses and doctors meet with us before taking Paislee in. They inform us that Paislee no more has hypertrophic cardiomyopathy and no longer a heart murmor, so they know we are relieved.....Oh yes that was music to our ears. We still have a heart tumor, but that is all!! Yay, one might wander why we get so excited about this because our child is still sick. Every little thing makes a difference. That was a bigger deal I think than we even realized. Paislee's surgery had no complications but I dont think we were prepared for the recovery/ph probe part. A ph probe is a tube they put into your nose and down your stomach to measure the amount of acid in your stomach. Paislee had to wear this for 24 hours which was a nightmare. We had to push a button on the monitor for start eating, stop eating, laying down, sitting up, coughing, and vomiting. This may not seem that bad but remember Paislee is just 2. She snacks when she does eat and drink. She lays down, she sits up, etc. ALOT. This is my Paislee in recovery and what we had to deal with for 24 hours. The white restraints on her arms are so that she will not pull the tube out and she can't reach her nose.



But we made it through the night and we will find all the results out Friday. We had to wait the next day for them to take the tube out so Paislee loved the fish and I decided to snap this picture to be funny through the fish tank. Everyone needs a little laughter especially after the week we had.

Again, Paislee has made it through many obstacles and we believe that she is a child of God and he has taken great care of her. Rick and I were having an interesting conversation during this whole ordeal and he said to me "You know Megan, Paislee has lived through everything our parents died from." I pause and I think he is so right. Rick's mom had sepsis which is a blood infection at her time of death. Paislee had a high infection count at birth and had to spend 21 days in NICU but she LIVED from this. My dad died of heart problems and Paislee is getting well from these each and everyday. So if you don't believe, my child is living proof...she has angels watching over her each and everyday.